Supported by Well | Live A Harder Death for People With Intellectual Disabilities Photo Credit iStock Hanover, N.H. — Several weeks after my patient was admitted to the intensive care unit for pneumonia and other problems, a clear plastic tube sprouted up from the mechanical ventilator, onto his pillow and down into his trachea. He showed few signs of improvement. In fact, the weeks on his back in an I.C.U. bed were making my 59-year-old patient more and more debilitated.
Still worse, a law meant to protect him was probably making him suffer more.
When the prognosis looks this bad, clinicians typically ask the patient what kind of care they want. Should we push for a miracle or focus on comfort? When patients cannot speak for themselves, we ask the same questions of a loved one or a legal guardian. This helps us avoid giving unwanted care that isn’t likely to heal the patient.
This patient was different. Because he was born with a severe intellectual disability, the law made it mu..